10/31/2022 0 Comments Kanso collarsMatthew Carlson is also on Aida's care team.ĭr. Matthew Carlson, M.D.: Cochlear implant surgery and cochlear implant technology has evolved very significantly over the last several decades. Vivien Williams: But, unlike these fish, Aida may benefit from technology to help her hear. Schimmenti: We share 70 percent of our genome with zebrafish, and the same genes that cause conditions in us, cause the same condition in fish. Kanso collars full#Schimmenti uses to learn about deafness similar to Aida's are tanks full of zebra fish.ĭr. Schimmenti: If you went and Googled this disorder, you'll see pictures of people who may have a white streak of hair, or they may have one blue eye and one brown eye…well, this the fish lab. Lisa Schimmenti says Waardenburg syndrome is a collection of symptoms caused by a change in a gene.ĭr. Lisa Schimmenti, M.D.: Aida has a condition called Waardenburg syndrome. Vivien Williams: Aida's mom and dad, Melinda and Matt Little, took her to Mayo Clinic, where a team of experts diagnosed Aida with a rare genetic condition. Melinda Little: When you first hear it, you kind of say, "That's not true,' or, 'What can we do to help it?" Vivien Williams: Baby Aida can't hear any of it. Vivien Williams: The happy sounds of childhood, a brother's giggle, a mother's loving coo or the joy of your own calls of contentment.
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